Clinical Research Trials : Porphyrias

Porphyrias

Porphyrias

1. NIH: Longitudinal Study of Porphyrias

  • Status: Open
  • PI: Dr. Cynthia Levy
  • Coordinator: Odalys Rodriguez
  • Contact: (305) 243-4648 / obravo@med.miami.edu

2. ALN-AS1-NT-001: A Natural History Study of Acute Hepatic Porphyria (AHP) Patients with Recurrent Attacks

  • Status: Future Trial
  • PI: Dr. Cynthia Levy
  • Coordinator: Odalys Rodriguez
  • Contact: (305) 243-4648 / obravo@med.miami.edu